A little history, I promise I’ll make this short. I was diagnosed with epilepsy at the age of 16 after having a grand mal seizure in the shower. (classy huh?) After several doctors and medications over the years I had a few more seizures here and there, with my last one being in January 2003. I went off my medication in 2005 after having several “clear” EEG’s and being told I have a 20% chance of ever having another seizure for the rest of my life. The doctors were assuming that I “grew out of them”.
Fast forward to a couple of weeks ago. At 12 weeks 5 days into my pregnancy I had another seizure. Eff. So the ER doc ordered an EEG and refered me to the Neuro Doc. Perfect. I had my first appt with him today and it was well… a bunch of shit.
I’m sorry, but I’m so pissed about the whole thing that I can hardly see straight. To me this was a one time thing. Not a big deal. I had already decided that unless it happens again I’m going to refuse medication. The side effects of seizure meds are effing nasty. There is no other way to put it. I wouldn’t wish for anyone to have to be put on them, and that’s not even considering the pregnancy factor and the damage that they can do to a fetus. And breastfeeding? Forget it.
Okay, back to the appt I go in expecting to be told that everything on the EEG looks fine. That they understand and agree that putting me on medication without another incident wouldn’t be a wise choice and that if I have another episode to come back and see them asap and we will discuss our options. Sounds reasonable right? NOPE.
Basically, after telling me that he is not entirely convinced that A) I even had a seizure and B) that my EEG was in fact abnormal; (Apparently the person who read the test reported some kind of abnormality, that he didn’t agree was in fact an abnormality. Whatever the eff that means) He tells me that he doesn’t know how to treat me and is referring me to the specialist(s) that is 3 hours away. W.T.F. (Side note: This doctor was incredibly difficult to understand so I’m not really sure what kind of specialist I will be seeing or if I’ll be seeing more than one??)
Are you now as confused as me? Awesome. Apparently being pregnant puts me on the “must be seen rightfreakingaway” list. So I’m not going to have to wait too long to get seen. I hoping just a couple of weeks as I’ll be in that area then and wont have to make a special trip. Until then, I’m going with R&R and extra fluids.